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On 17 november, Wilbert Bannenberg, chair of the Pharmaceutical Accountability Foundation, presented at the regional Access to Medicines Dialogue of the EU Alliance. The dialogue is organized by the International Treatment Preparedness Coalition (ITPC) and hosted by the European Alliance for Responsible R&D and Affordable Medicines. Wilbert was invited as...
Bergeijk, July 19, 2021 On September 7, 2018, the Pharmaceutical Accountability Foundation (PAF) submitted an enforcement request  for abuse of a dominant market position by the company Leadiant with the drug CDCA. The company had increased the price 500 fold after obtaining orphan drug market exclusivity. The Netherlands Authority for...
The Pharmaceutical Accountability Foundation welcomes the news that the Amsterdam UMC (Amsterdam University Medical Centers) has resumed supplying Dutch patients with the rare disease Cerebrotendinous Xanthomathosis (CTX) with pharmacy compounded chenodeoxycholic acid (CDCA). This action became necessary after Leadiant Biosciences had increased the price of one CDCA capsule from €0,28...
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